Autism Doesn’t End At 5

If you have a young child with ASD and you live in the province of Ontario, then you are aware of the governments new funding revisions. Children 5 and older are being cut off from government paid therapy. What they are doing families in our province is disheartening to say the least.

A wonderful and dedicated group of BCBA’s advocating for the families and children affected by ASD and this most unfortunate set of events, have put together a press release, hoping to stop the government from making these life-altering changes to autism funding before it’s too late.

Please help spread the word!!!

1- Twitter is an excellent resource. If you do not have a Twitter account, setting one up is relatively easy. Remember to include hashtags #AutismDoesntEndAt5 and #BCBAs and share this document.

2- Post on your Linked In and Facebook pages.

3- If you own or operate a business, please consider including this information on the business’ media. This is especially important right now. The more voices and the larger the voice, the better. Similarly, if you have media contacts or contacts both personal and professional, now is the time to ask them to join in disseminating this information.

Here is the press release:

GROUP OF BOARD CERTIFIED BEHAVIOUR ANALYST’S (BCBA’s) DENOUNCES RECENT GOVERNMENT CHANGES TO THE AUTISM-FUNDING PROGRAM IN ONTARIO

FOR IMMEDIATE RELEASE

Toronto, April 20, 2016 – The Ministry of Children and Youth Services has declared that as of May 1, Ontario will no longer provide Intensive Behavioural Intervention (IBI) to children of five years and older. A group of nine Board Certified Behavior AnalystsTM (BCBAs), who are practitioners and advocates for children with Autism Spectrum Disorder (ASD) and who look at the full scope of the science behind treatment, have significant concerns with this new provincial policy. This group of BCBAs believes it is their professional, personal, and social responsibility to bring to the government’s attention that the proposed changes will have a destructive effect on this community of children, their families, and all present and future Ontarian’s.

“The recent unjustifiable, ill-advised implementation of an age cutoff for funded IBI is regressive and foreshadows a dark future for those denied access to treatment” said Dr. James Porter, BCBA and Clinical Psychologist.

Intensive Behaviour Intervention (IBI) teaches skills that are fundamental to a child’s ability to integrate and participate in family, community, school, and with social life.

Beginning May 1, access to IBI will be limited to children ages two to four. Currently, children wait two to four years to get IBI treatment. Between the diagnosis and treatment wait times, the new policy changes capping access to IBI at five years old means 1,000s of children will miss out on this life changing treatment. This group of BCBAs questions the ethics of the decision, as the Ministry’s own expert panel did not even recommend cutting kids over five off of the waitlist. Without access to treatment, it puts the welfare of children at risk, and studies have proven that treating children with ASD, rather than denying them treatment, is more cost- effective for taxpayers in the long run.

“As BCBAs it is our responsibility to recommend treatment based on clinical need and not constrained by age,” said Nancy Marchese, BCBA and Psychological Associate. “It is completely unethical that the government is denying children over five years old, IBI, a treatment that allows them to learn critical skills that are integral to their development and quality of life.”

Earlier this month, the Ministry of Children and Youth Services announced a new provincial policy for autism services along with its plans to invest $333 million in autism over the next five years. The new policy is said to increase access, reduce wait times, and expand Intensive Behaviour Intervention (IBI) for children ‘in the appropriate developmental window’ – identified as two to four year olds. BCBAs who do the work and oversee IBI treatment program were not on the expert panel to inform decisions about this new policy. Further, this group believes this new policy was built through a narrow scope of research, neglects important empirical evidence from the behaviour analytic field, and that more stakeholders need to be involved in the decision-making process, such as parents and BCBAs. This group of BCBAs has identified three main challenges to the new policy:

● it will leave children with ASD at significant risks including severe challenging behaviour’s, reduced adaptive and self care skills, the absence of meaningful communication skills and long term dependence on their families and society

● the scientific viability of the proposed Autism Program Model is questionable

● the methodology for the roll-out of the model is impractical

This group of BCBAs suggests a more evidence-based behaviour analytic approach to treating autism, which can lead to important differences and allow the optimal success of children living with ASD. This would require access to early and accurate diagnosis, a customized approach that matches the treatment program to the needs of the child, and the services of IBI (ie: 20-40 hours per week) without arbitrary age cut offs. This group also believes ethical and economic implications of a less intensive treatment model for children over the age of five who have never received IBI treatment must be considered, as it has no current support from scientific data and efficacy studies.

This group of BCBAs has recently presented these concerns to the Ontario Ministry of Children and Youth Services with hopes of change before the alterations are made on May 1st.

For more information about these concerns.

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ABOUT GROUP OF NINE BCBAs

Collectively this group of nine Board Certified Behavior AnalystsTM (BCBAs) has provided over 158 years of service to approximately 3,200 individuals with autism across Canada, the U.S., and internationally. They have joined together to voice their concerns regarding the new provincial policy for autism services and the ramifications of those proposed changes on some of the most vulnerable persons within our province – children with ASD, their families, and the communities in which they live. The group is comprised of Shiri Bartman, M.A., BCBA; Jennifer L. Cook, MS, BCBA; Tammy Frazer, M.A. BCBA; Lisa Israel, R.N., MADS, BCBA; Kristin Gunby, MS, BCBA; Tracie L. Lindblad, M.Sc., Reg. SLP, M.Ed., BCBA; Nancy Marchese, M.A., C.Psych Assoc., BCBA; James Porter, Ph.D., C.Psych., BCBA; Nancy Warren, M.A., BCBA, LBA (VA).

For media inquiries, please contact:

Dr., James Porter, BCBA, C. Psych., 289-937-6096, portejam@hhsc.ca

Tracie Lindblad, M.Sc., Reg. SLP (CASLPO), M.Ed., BCBA, 905.849.7993 ext. 10708, TLindblad@monarchhouse.ca

Nancy Defina Marchese, BCBA, C. Psych. Assoc., 416-889-7572,

By | 2017-01-10T14:34:59+00:00 April 21st, 2016|Categories: News|Tags: |

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